A bit about me (:

Trigeminal neuralgia (TN) challenged me 16 months ago.  I’m presently waiting for a head surgery (MVD) that, i hope, will permit to gain my active lifestyle back.

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Before September 2015, I was enjoying up to 5-6 hours a week of training and/or family activities.  One day without notice, I started experiencing trigeminal neuralgia.

During the last 16 months, I have not counted the titanic amount of time spent trying to gain access to so many different medical professionals, or to surf the net for medical knowledge.  I took charge in the most dynamic way to solve my condition and get back in shape.  I thank myself for being resilient and stuborn.

At first and since I was physically very active, the symptoms of crisis appeared to me immediately after a physical activity.  I had already endured a herniated disc in the past and it was just as if I had one in my face!  Shortly afterwards, I landed at my dentist, who referred me to an endodontic specialist.  Everything was fine … I had to look elsewhere …

My symptoms:

  • Episodes of severe, shooting or jabbing pain that feet like an electric shock in the mandibular & maxillary branch of the trigeminal nerve
  • Bouts of pain lasting from a few seconds to several minutes
  • Constant aching, burning feeling that’s less intense than the spasm-like pain
  • Pain affecting the left side of the face in areas supplied by the trigeminal nerve, including the cheek, jaw, teeth

Shortly afterwards, I landed in a neurologist’s office who prescribed me all the right drugs.  At one point, I began to realize that pharmacology would never allow me to eliminate this unbearable and omnipresent pain. I was now conviced the root cause of my pain resided in a vascular element that was compressing my trigeminal nerve. Indeed, I had noticed a direct correlation between the level of my pain and physical activity on my part.  Enough was enough…

A few days before christmas, I arranged to see a top neurosurgeon who proposed to operate on me. Finally !  The procedure is called a microvascular decompression (MVD). It’s apparently the procedure with the best outcome pourcentage. So there I am, inviting you to follow my trail. This rocky path has been my toughest challenge so far, but have no doubt, I will succeed …

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One thought on “A bit about me (:”

  1. Thanks for sharing your story! I had very similar TN symptoms to you (also left side and also very physically active) for nine months before I had MVD surgery. I commend you for making that decision and choosing a top surgeon. I have lived pain free now for the full 3 1/2 years since my surgery and I would do it all over again. I also published my story through having my successful surgery and how I came to that decision that you can find here . . . https://healdove.com/disease-illness/Trigeminal-Neuralgia-How-I-Survived-the-Suicide-Disease

    Liked by 1 person

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